Hi there! I’m 20 and was diagnosed at 16!!

This website is awesome and has tons of information https://www.ichelp.org (this has the IC diet on it, changing your diet is the first step!!)

Here is what I take on a daily basis!

• marshmallow root (amazon)
• slippery elm (amazon)
• licorice root (amazon)
• ALOE VERA (amazon) (this one is huge)
• CystoRenew (amazon)
• Sodium Bicarbonate (amazon)
• Tumeric (amazon)

• l-arginine (amazon)

• amitriptyline (prescription)

• hydroxyzine (prescription)

• Uribel (prescription)

what I do for a flare!

• ICE and HEAT. I alternate between a heating pad and an ice pack (they have ice packs on amazon made for your perineal area https://www.amazon.com/dp/B081TTKHWX/ref=cm_sw_r_cp_api_fabc_C7zSFbGZV5BNF)

• BATH. I will sit in a hot bath for hours and hours if I am flaring. Kind of gross, but i will just pee in there if i need to. it helps with burning and urgency.

• RESCUE MEDS. I take Benadryl like candy when I am flaring. avoid Ibuprofen as that can irritate the kidneys. Zofran is for sure necessary if you get nauseous during flare. don’t be afraid to ask your doctor for prescriptions.

-FLUIDS. drink crazy amounts of water. I live off of Throat Coat herbal tea and gatorade when I am flaring. Avoid cranberry juice and other acidic fluids.

• If all else fails, I have B & O suppositories that are prescribed by my doctor. They are opioids so avoid them if at all possible.

I think that’s all I have for you!! Don’t worry. it gets better once you get on a regimen that works for you. Remember that everyone is different. This is what works for me. You will need to adjust it to fit you!

Hope this helps! Let me know if you have any questions. Good luck my friends ❤️